← Return to Looking for someone who has axonal sensorimotor polyneuropathy

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@minfromtexas

I was diagnosed about 3 years ago. The symptom that started it for me was severe cramping in my calves and an overall fatigue in my legs. I started the process of getting a vague diagnosis with a doctor who was not forthcoming with information. She wanted to throw drugs at me without knowing for sure what was going on. After a few visits where I felt unseen and lost confidence in her skills, at my request, she referred me to another neurologist who is known in the community for his diagnostic skills. Long story short, I was dx with Sensory motor axonal neuropathy. Eventually I received a spinal cord stimulator which continues to help with symptoms. I also take 800 mg Gabapentin nightly, a muscle relaxer & Vit B. For now at least, symptoms are managed and there really is no pain, just discomfort. Wishing you the best. I'd search for another neurologist who is more forthcoming and responsive to your needs.

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Replies to "I was diagnosed about 3 years ago. The symptom that started it for me was severe..."

Have you heard about Sanexas?

I was told I needed a neuromuscular neurologist that specializes in severe axonal sensorimotor neuropathy. Each neurologist specializes in different things. I had to learn the hard way after mine passed away after 20 years. Some specialize in Parkinson’s , some epilepsy and so forth. Look at the neurologist website to see what they specialize in.