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Help with understanding test results

Autoimmune Diseases | Last Active: Jun 29 6:13pm | Replies (79)
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@reets70

My rheumatologist told me I have “super sensitive syndrome” which is a medical way of saying “nothing concrete shows up on the $5,000 worth of blood tests he did! He is a wonderful rheumatologist, but all of my tests show the same diagnoses they always show, autoimmune issues. It’s a confusing mess of symptoms, and I’ve been living with them for sixty years.

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rebaba | @rebaba | Jun 25 9:06am

@reets70 I (and others) viewed my recent test results as a possible explanation for the symptoms I've had (some) for nearly 60 years. I am beginning to believe that is likely to be "magical thinking" on my part and probably need to narrow my expectations. A few years back I decided that my ability to sleep was paramount and decided to get that one symptom solved and did!! I had to "kiss a few toads" along the way, but finally found an ENT who was willing to help me, instead of stringing me along with too much prednisone and years of unhelpful appointments. I need to do the same now and decide the next "most important" symptom to tackle.

I tire quickly with docs who are quick to hand out pharmaceuticals, in lieu of answers.

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