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Dealing with multiple GI issues
Digestive Health | Last Active: 10 hours ago | Replies (53)Comment receiving replies
Just want to hear from other adults that have had GI issues. I am at Mayo Rochester for my own issues that are very overwhelming. I have a genetic condition that affects my liver & lungs but unfortunately affects a lot in the body: pancreas, inflammation, sinuses, GI, allergies. I have given the gene to my daughter and she is suffering miserably from GI symptoms (liver has not been tested). Her stomach hurts on the daily especially after every meal. She is headed off to college to play a college sport and I’m feeling like I need to get her fixed fast. She had an appt with a GI doctor at home & it got all screwed up to where they can’t get her in before college. She went through tests (through her primary….sent to imaging) to watch food through move her system and it is not her gallbladder. Everything looked “normal”. She has allergies (not food) and is not celiac. No allergy to dairy although major problems with formula as a baby. Her college is in Maine and I am scared to get her started at Mayo Clinic so far away but we are desperate. Just curious if anyone has experienced anything similar and had advice.
Replies to "Just want to hear from other adults that have had GI issues. I am at Mayo..."
Try eating smaller bland meals with low acid items. Don’t drink carbonated beverages. Only water and unsweetened almond milk which is alkaline. No citrus or vinegar products. See if that helps.
Thank you for the tips. Established her with a patient ID today so now need to go through the referral process of getting her in. These tips will help to get her by until she can get a doctor that can truly help her.
This is great. She is seeing a dietician who has been great about adding fermented foods & making her eat immune boosting foods. She had been prescribed antibiotics which did not help at all. She started a journal three weeks ago. She had issues with formula as a baby & decided two days ago to give up dairy after feeling awful following consuming Skyr. I think she may be lactose intolerant but not sure how you know for sure. We’ll see if that helps.
Hi there, I'm beginning to think that the DRS are less than useless. What genetic condition do you have? Any autoimmune diseases? You said food tests and celiac look normal. Have either of you had an endoscopy with biopsies tested at a pathology lab?
I have plenty of severe GI issues that no dr. and no meds help. I have Celiac with severe villi destruction, yet I am asymptomatic on/off gluten; pSS, primary Sjögren's syndrome, this affects SO MANY OTHER BODILY ISSUES, not just dryness. My pSS is increasing lymphocytic infiltration in lungs and pancreas (due to pSS), CIC -completely Treatment resistant for 17 yrs. I have to keep my poop very thin with miralax. I am 65, fighting everything for 15+- yrs.
If you want to, what are yours and your daughters symptoms? I am just another sufferer like you guys... but maybe we have ideas, from trial and error, that we could share. Take care, Shelley
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Okay, It is just pain then? No poop issues? Gas issues? Others can weigh in on pain (not my issue). I have only a few recommendations:
1. Slippery Elm "tea" (inner bark) supports the mucosa of the gut. Pain might = inflammation. I take 1/2 teaspoon in hot water in the morning, first thing, but Google what might be best for her.
2. Stomach massage, to move stool and gas along. See the UK's NHS routine here: https://www.torbayandsouthdevon.nhs.uk/uploads/25773.pdf.
3. Bitter gourd. Sold at some Asian markets, either fresh or frozen. It helps me. There is a study posted to the NIH website. Google "NIH and bitter gourd." I put some in multi-veggie soups. It is definitely bitter, but I it makes a difference and I eat it often for a happy belly. If it is magical for her also, see what you can do. Maybe freeze-dry it for college and she can add it to canned soups.
4. If this genetic condition is amplified by stress, consider Cognitive Behavioral Therapy (CBT), the hypnosis route. All you do is listen to a recorded reading daily (the therapist creates a different one at the weekly session, the other days, its recording is your "homework"). Seven weeks and you are free; you can then induce the same gut benefits on your own, wherever you are, and listen to a recording again for a reboot. GI Psychology in Burke, VA. Virtual sessions. My therapist was Tina. I love that it is short course and then independence and success.
Good luck -- I am sure others will have some useful medication and other ideas.