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MCTD (Mixed Connective Tissue Disease)

Autoimmune Diseases | Last Active: 2 hours ago | Replies (226)

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@artoffersspace

Hi, I also have been diagnosed with ICTD/MCTD and like you, I have a rod in my spine. Metals can cause autoimmunity, I've seen the studies. My rod was put in when I was a child, my body tolerated it for some years but over time, the rod can deteriorate. I'm not sure what to do because I did go to Mayo Clinic, they did not recommend taking out the rod. I'm so tired of the pain and fatigue and I still have young children. Please let me know the outcome of your tests. I'm curious.
Thank for sharing your experience. I'm so sorry for your pain and suffering. Please let me know how you get on.

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Replies to "Hi, I also have been diagnosed with ICTD/MCTD and like you, I have a rod in..."

Welcome to Mayo Clinic Connect @artoffersspace ! Have you had MCTD for a while? Have you asked your doctor about any medicine that would lessen the fatigue? I was prescribed one when I was first diagnosed with a different AD, but I just couldn't take one more pill!
I like your pseudonym—are you an artist?
When will you see your doctor next? Would it be a problem to talk with them about your fatigue and medications? How do you think they would respond?