I've been diagnosed with Cancer unknown primary.
In January my dental hygienist found a small lump, at the time, in my left neck. After CT scans, biopsy it was confirmed carcinoma, highly undifferentiated. Pet scan showed tonsils and back of tongue being lit. Tonsillectomy was performed but negative for cancer. Had neck dissection to remove golf ball sized tumour from my neck. Histology is adenocarcinoma but pathology did not indicate primary.
I just started treatment-30 rounds of radiation and 3 rounds chemo/cisplatin.
My husband had throat cancer (voice box), fall 2022. He had a pet scan 11 months ago that was clean. Thencame thr devastating news. His cancer has returned and spread to both lungs with no option for surgery. We found this out 4 weeks ago. He has chemo/immunotherapy every 3 weeks. We are both going thru treatment.

Seems to me that scans should happen more frequently. In Canada, since Healthcare is free, this was detrimental.

Assume CUP cancers should do pet scans 3 months or 6 months? Anyone know the recommended guidelines? I would pay and travel to states if it means chance of catching it early/ living. My PET was in April.