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Macrometastasis and Age at Diagnosis
Breast Cancer | Last Active: 4 days ago | Replies (10)Comment receiving replies
Like you, I have found that taking the tamoxifen at night has helped the fatigue. I get nausea from it a few hours after I take it, so it is better to sleep through it than try to manage that during the day. I have noticed what seems like a 2-3 month cycle with the tamoxifen. Once every 2-3 months, I will experience a 7-10 day "tamoxifen trough" (at least that is what I call it), where I need extra sleep, have some brain fog, and can't seem to find the energy to do anything. Walking is good and helpful. I tried caffeinated tea for awhile as an energy boost, but the caffeine has other negative side effects for me. I take extra magnesium to moderate the leg cramps. I'm just hoping I can stay on the tamoxifen for the remaining 3 years. What was your dose of tamoxifen when you were on it? Were you able to take the 20mg or did you go lower? (I'm on 10mg right now.)
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I stayed on 20, but it wasn’t always easy. I will admit to struggling mightily at times. Legs zinging at night, muscle cramps, and fatigue are all real. I was blessed to have a job where at least some of the time I could adjust my duties by working from home or other types of schedule adjustments, when things were at the worst. Like you, I found cycles, most of the time I could manage, but there would be times when things were harder.
I had hot flashes that would start almost like a seizure, where my brain kind of glassed over, I still occasionally have these, but much less often.
Have you identified ways that you can adjust around some of the troughs?