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Support for small fiber neuropathy with cold intolerance sensory nerve
Neuropathy | Last Active: Jul 12 1:09pm | Replies (23)Comment receiving replies
Hi….
Have been to Mayo Clinic twice in MN and had many tests for blood work, MRI, EKG, thyroid, etc. One doctor said I had slightly elevated symptoms and I might have Sjogrens….but no definite diagnosis! Said I could take Sjogrens drugs to see if it helps but neurologist didn’t recommend it! Was not happy with Mayo Clinic on how I was treated!
Replies to "Hi…. Have been to Mayo Clinic twice in MN and had many tests for blood work,..."
Did Mayo Clinic test you for serinegative Sjogrens? I was tested for it came up positive. The thing I dislike the most is I had my teeth cleaned six months ago and went back. I need seven crowns from cavities. I brush, floss, use a water pick along with using prescription fluoride.
The test include brain scan,
lip biopsy and two eye test to check for dry eyes and scratches on the cornea. They can also biopsy the salvia gland.
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@gcattnu39
You should get copies of all Mayo Clinic tests and reports/medical notes and get 2nd/3rd opinions from orthopedic, neurologist, and rheumatologist specialist. I have had things missed in MRIs, bloodwork, etc. and extra eyes and opinions may help when reviewing along with your symptoms.