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Celiac Artery Aneurysm: Anyone else with same illness?

Aortic Aneurysms | Last Active: Nov 16 12:44am | Replies (510)

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@ewillard

Hi I was diagnosed with a celiac artery anuerisym with dissection in 4/2010. I had severe abdominal pain for 2 weeks, lost 10 lbs before they did CT and found it. I had it repaired with immediate invasive open surgery. Since then, I have had issues with gerd, barretts disease, malnutrition, gastric and abdominal pain, bloating, and many tests to figure stuff out. Within the last 2 years, I have had intermittent abdominal pain and gastric issues with severe pain from mid upper abdomen between breasts under ribs to left side, 30 min to 5 hours in length. Yesterday 4/12/19 (9 years to the day of last surgery) I was diagnosed (AGAIN) with another celiac artery anuerisym. I have been referred to UCSF for further follow up and decisions. Has anyone else heard of someone being diagnosed again after repair? Needless to say, I am freaking out with how it was supposed to be rare and I have it again.

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Replies to "Hi I was diagnosed with a celiac artery anuerisym with dissection in 4/2010. I had severe..."

Sorry that you are having a recurrence but is good that you are having it addressed. Best wishes and please keep us informed.

I hear UCSF is a great research hospital. I think this is a good referral and that you're in good hands. Ill.keep you in good vibes. Let us know...?

Hello @ewillard and welcome to Mayo Connect.

I can certainly understand your discouragement and your "freaking out with how it was supposed to be rare and I have it again" as you said in your post. While I have never had this problem, I have had a rather rare disorder myself with reoccurrences. When a disorder is rare, it seems to create even more anxiety because it is something that only a few people can relate to. Is that the way you feel?

It sounds as if you are getting some good medical attention and I hope that your visit to UCSF is helpful to you. Will you provide an update and let us know how you are doing?