← Return to I have a neurological illness that has puzzled doctors.
DiscussionI have a neurological illness that has puzzled doctors.
Brain & Nervous System | Last Active: Aug 26 9:29pm | Replies (46)Comment receiving replies
Replies to "What are your symptoms?"
In addition to me having a speech impediment and a hearing impairment, I have a strange type of spastic paralysis. I'm able to move all parts of my body (but, with an extreme lack of flexibility and I move very slow). It's as if my body is shriveled up, I can't bend my legs back, but I can extend my legs forward and I have high muscle tone.
I do get physical therapy, but it only slightly decreases the spasticity.
Doctors have tested me to see if I have Cerebral Palsy and they were easily able to see that I don't have Cerebral Palsy. They even gave me several EMG tests (to see if I have ALS), but again they were easily able to see that I don't have ALS.
I've had numerous Lumbar Punctures ( to test my spinal fluid) & still, doctors have not been able to diagnose me as having anything. They tested me to see if I have Demyelinitis and that also came back with a negative. The doctors are absolutely puzzled as to what is wrong with me.
What we do know is that a few years ago, I had an ear infection and it affected my spinal cord, which led me having symptoms that mimiced Cerebellar Ataxia (for 2 or 3 weeks). Then, all of the symptoms went away and I was 100% healthy & normal again.
I was fine for approximately 6 months and then everything began to change. Now, I have the aforementioned spastic paralysis and the doctors haven't been able to find out what is going on with me Neurologically.
Thus, I'm seeking to be treated (& hopefully completely cured of this mystery, Neurological illness) at The Mayo Clinic.
If anyone has any suggestions or advice for me, please let me know your thoughts. I sincerely appreciate you all for your support and motivation that I receive from The Mayo Clinic Connect community.🙏