Thank you for your helpful suggestions. I've been doing LMP for a year and while it's been helping me clear my lungs, I definitely need something more.

I seem to play this role here but The Lung Matters group is really not that draconian. Countless times I have made comments to other members there saying that people need to read their own bodies and be sensitive to their own responses to these and all protocols. I have also expressed that after trying Levalbuterol, even at a .63 dose I stopped b/c it made me jittery—and there wasn’t any kind of negative response about those and other comments. Her protocols if approached with a critical intelligence, can be extremely helpful. What she doesn’t want is a big discussion about whether ACTs are important, or whether it is important to guard against aspiration, etc. Or whether we should ask for susceptibility testing before taking any kind of antibiotics or not. It’s really for people who want to learn from her extensive research and personal journey and then tailor those observations to their set of circumstances. There are many people who don’t do what she suggests regarding sterilization, etc. and talk about it openly. I, for one, have found her to give untiring support to many people like me, who for example, couldn’t go near 7% saline in the beginning of my present journey without going into coughing paroxysms. She said it took her a whole year to acclimate to it herself, and suggested I do it very gradually and gently, starting with 3%. Her advice bore fruit and I now can nebulize 7% twice a day without a problem. I’m very glad I have this potent aid in my healing tool box now and it is thanks to her.

All I am saying here is that although there may be people who have had a difficult experience on the Lung Matters group, there are many others who are grateful to have that level of support and coaching. She is a medical researcher by trade and has always been treated at National Jewish since the beginning of her BE and MAC journey, so I have as much respect for her as I have for any moderator on any of the other groups I participate in.

Also, people will sometimes deify someone b/c of their credentials, but those people, Falkinham among them, have also made many contradictory statements that should be cause for concern. This is not just my observation, but the observation of other diligent, well-versed patients even in this group.

There are tons of people on the Lung Matters page who are on drug regimens who deeply appreciate her contribution and she has shown herself to be a tireless researcher and supporter of many. There are countless expressions of gratitude among people who frequent that page. So let’s not just write off Lung Matters as some kind of fundamentalist cult. There is much to be learned there.