← Return to Support for small fiber neuropathy with cold intolerance sensory nerve

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@dlydailyhope

@gcattnu39
I have idiopathic small fiber neuropathy that is affecting sensory and autonomic systems. My neurologist told me the other day that there is nothing to “cure” SFN. I have taken Cymbalta/Duloxetine for nerve pain and it helped some but makes you tired. I also take low dose gabapentin (100 mg) but doesn’t do much except make me dizzy/tired. I take alpha Lipoic acid and Acetyl l carnitine supplements for SFN and it has helped me. You also want to make sure you are not deficient in any vitamins (like vitamin b12) or at toxic levels (vitamin b6). You would need blood work to see if anything underlying SFN needs to be treated. Have you had your thyroid checked due to temperature regulation issues? Have you had a cervical MRI or EMGs done since your car accident to see if anything is being compressed/pinched?

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Replies to "@gcattnu39 I have idiopathic small fiber neuropathy that is affecting sensory and autonomic systems. My neurologist..."

Hi….
Have been to Mayo Clinic twice in MN and had many tests for blood work, MRI, EKG, thyroid, etc. One doctor said I had slightly elevated symptoms and I might have Sjogrens….but no definite diagnosis! Said I could take Sjogrens drugs to see if it helps but neurologist didn’t recommend it! Was not happy with Mayo Clinic on how I was treated!