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Newbie confused by doctor options to choose, including Keith McCormick
Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (83)Comment receiving replies
I agree with those who have the opinion that Evenity is too new and not studied enough and though my endocrinologist wants me to take it and feels that if you have no heart issues to begin with then you should be able to safely take it, I am prone to chest pain and so I think being on events would be very stressful for me. I also have had IBS since 2005 so I am wondering if Forteo would exasperate digestive problems like that. Or if Tymlos would be less apt to do that. My primary says that Forteo is the way to go because it builds bone but if it causes me stomach issues I can just go off it. However once you go on it you can stop it but then you have to immediately start something else and I guess that would be Recast. If you can tolerate Recast-great but then after a few years you have to stop taking it, and then what?? I've got an appt to be evaluated for Onero. I hope that's the answer because other than that I'm not sure. I've been on Fosamax for two years about twenty years ago and have had acid reflux ever since. I'm a 72 year old granny with severe osteoporosis and I've been on a lot of supplements for osteoporosis for the past two years and have broken my hip by a fall two years ago and so far for the past three years have been stable with my Dexa Scans, praise God. I'm not too dedicated to exercise because it's difficult for me. But I'm persevering!!!
Replies to "I agree with those who have the opinion that Evenity is too new and not studied..."
If your bone density scan shows severe osteoporosis, you have those three choices: Forteo, Tymlos and Evenity, all of which build bone. I chose Tymlos because the injection pen has "clicks" allowing the dose to be adjusted. I started at a lower dose and moved up as my body adjusted. But that's me and I was too sensitive to Forteo. Another poster will say they were better with Forteo. It is very individual.
McCormick in his book "Great Bones" and others have said Evenity is great if you need to improve fast. Sounds like that might be you. On the other hand Tymlos and Forteo are good for healing and you can take Evenity after Tymlos or Forteo.
It sounds like you are in a bit of dangerous predicament so a strong bone builder that works fast, like Evenity, isn't a bad idea but talk with your doctor.
The study on cardiovascular risk showed no difference between Evenity and placebo but Fosamax was slightly better, possibly due to chance. I do think the various effects of inhibiting sclerostin need more investigation but most people are doing really well on Evenity. (I did Tymlos then 4 months Evenity and now Reclast.)
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Hi @edwinabutterfly, You've been through so much. That must be really tough.
It's great that you have that appointment for Onero, and you're fortunate to have access to a location that offers it. I just recently watched a video of Margie Bissinger interviewing Dr. Claudia (the first U.S. adopter of Onero) who said that the participants don't want to stop. Some drive 2 hours or more each way to get there. I hope it's the answer for you.
If you're interested in watching that interview, here's the link: https://youtu.be/k5SOFJnTyFc?si=gEYUQOr7tkBtSTjm