← Return to I keep relapsing when I try to get off prednisone

Discussion
Comment receiving replies
@susanew

I hear you! I started low at 8 mg Medrol. I can only taper down to 2 mg. I tried doing 1 mg. with stiffness. I thought it might just be my body adjusting to a lower dose. Wrong twice! Instead of easing up it just got horribly worse until I was in a flare again. Trying to stop and take no medication seems out of reach. It is very frustrating. When I see my rheumatologist that is definitely something I will bring up. In my case, I am being treated for osteoporosis with Evenity. But I know taking steroids is counterproductive yet I cannot find a way to completely stop without the stiffness.

Jump to this post


Replies to "I hear you! I started low at 8 mg Medrol. I can only taper down to..."

I’m in exact same boat. 3rd time trying to get below 3 mg. I just upped it to 10mg Medrol this week trying to knock it out before I reduce again. So discouraging
I wonder if doctors should be stepping in and helping more when we get to this stage.

After three years of polymyalgia, I may be on 2mg. Pred. for the rest of my life. Fortunately, my bones are doing fine…probably due to being active and taking magnesium with calcium. It is battle!