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Just Want to Talk | Last Active: 3 days ago | Replies (27)

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@becsbuddy

@heisenberg34 The pain pump doesn’t help all the pain that you do have? Was the MRI going to look for areas of inflammation or something more specific? And you cannot disconnect the pump for any extended period of time? What is the neurologist going to do for you? And do you have a PCP?
Your PCP should be able to refer you to the most appropriate doctors starting with an internal medicine doctor who can look at the entire picture. Go back to your PCP and see what she can do to help you. Also, Connect has a Chronic Pain Support Group that might help. https://connect.mayoclinic.org/group/pain/ I will ask the mentor who oversees the group if she would touch base with you.

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Replies to "@heisenberg34 The pain pump doesn’t help all the pain that you do have? Was the MRI..."

Thanks for responding. So many questions...lol. Let's see. MRI is supposed to look at lumbar spine and pelvic area. I will mention inflammation. The pump can, apparently, be turned off by the rep, who will be present at my MRI. Not all imaging centers can do a scan if you have an implanted pain pump. Just found out. Scrambling for another MRI place. I am hoping the neurologist can check out all my various nerve connections (or, whatever else they normally do). Would really be grateful if ANY doctor would refer me. Pain doc seems to have no interest in referring me to anyone else.
Yes, would like to hear what the mentor has to say. In eight years, none of the 18 docs, chiropractors, etc has been able to pinpoint what's really wrong with me. Just leep getting symptoms adressed.
The pain pump has never given me any pain relief from day one. It just sits in the front of my abdomen, bulging out like a dried out bagel. Might as well have that piece of junk removed. I think I still have a dissecting kit from my biology teaching days. How hard could it be? It's just under the skin.