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Help with Chronic Fatigue Syndrome

Just Want to Talk | Last Active: 6 days ago | Replies (56)

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@covidstinks2023

Bless you. I am so sorry. The medical field has changed a lot since COVID. I think doctors and nurses are burnt out to be honest. Not to mention, short staffed.

A friend of mine has severe fatigue from having chronic fatigue syndrome & narcolepsy. She was put on prescription Xywav and it has helped give her more energy during the day. It has given her a lot of her life back.

Some things come to mind if I may ask?

1) Have you had all of your thyroid levels checked? TSH, T3 , T4 and Thyroid antibodies and antiglobulin? I had to go to an endocrinologist. My Hashimotos (Hypothyroidism) did not show up in the TSH, T3 & T4, but did in the other test. Hair loss, dry skin, joint pain and fatigue and a lot of the other symptoms you describe can go along with Thyroid Disease

2) Have you had COVID? It can cause hair loss, fatigue & brain fog. Long COVID can cause these symptoms to continue.

3) Have you had all of your hormone levels checked? Cortisol level? An endocrinologist can do this.

4) Have you had all your levels checked for autoimmune diseases? A Rheumatologist or some primary doctors will do this. Have you had your B12 & D3 level checked? These being low can cause joint pain and fatigue. Your primary doctor can check these.

5) Fibromyalgia & Chronic Fatigue Syndrome tend to go hand 'n hand. I have both. A lot of the symptoms you describe fit under these two. They are hard to get a diagnosis on because there is no test for them. They can only do tests to rule out MS, Rheumatoid Arthritis & Lupus. They palpate all the trigger points to see if you are tender/painful in those areas. Your primary doctor could run a sed. rate to rule out the 3 mentioned autoimmune diseases.

Sometimes you have to be a little assertive and say something like, "Do you think I could have an autoimmune disease?" "Can we do a complete panel and check for it please?"

I know how frustrating this can be. Don't give up. Praying for you to feel better and get a diagnosis and get treated.

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Replies to "Bless you. I am so sorry. The medical field has changed a lot since COVID. I..."

the thyroid tests were run 3 different times by 3 different doctors and all the checks come back normal....i have been hammering these so called doctors for two years now and they just dont get it.....i asked them to treat the symptoms and they all refuse....i asked them many times to check the auto immune and they said they have and all is normal and i asked all of them to check anything that could cause these symptoms....they all say if the tests dont show then they will not treat.....and my life is slowly going down the drain as it is daily inching down but they just dont care as i talk to them....so...i will start the cycle over for the 5th time with getting a new primary doctor that maybe will do something...but...i am beginning to think that since i did not have these symptoms before i took the two covid shots that might be the cause of some of this and i brought this to my heart doctor and my endocrine doctor and they laughed at me....yep....sure did.....the other questions i will write down and try to put them before the primary doctor when i get another one which i will try next week....so thanks for the help and i will back in touch....jim