Hi @hungrybirder,
After a DEXA in 2007+/-, my PCP told me I had osteopenia. My scores were clearly in the OP ranges at approximately age 52. She said not to worry about it :(. Fast forward to 2011 when a new doc reported that I had OP, not osteopenia - what a surprise! He recommended Reclast to maintain my scores, which really weren't all that bad.
I had five Reclast infusions, 2011-2015, without issue or side effects and my doc recommended a drug holiday. Reclast was a fairly new treatment at that time and my scores stayed basically the same while on the treatments. After a DEXA around 2017, my scores had improved so greatly that my rheumatologist continued the holiday. It appears now that those scores were erroneous!
In 2019, another DEXA revealed the errors of 2017 and I was again prescribed Reclast in 2020 and I think 2021. It has been revealed, by virtue of x-rays and an MRI that I have had four compression fractures.
I'll get my "one year Evenity chip" this week and need to talk to the doc about whether or not I can continue Reclast since it worked very well for me. The doc wants me to begin Prolia, but hesitantly said I could probably do Reclast when I pressed him for answers. He, however, forgets what treatments I've been on and seems to be lacking about reviewing my drug history so that he can give me good intel on whether or not I can go back to my good old friend, Reclast.
I don't want to undo any gains I've had (spine is now at -1.0), so I want to make an informed, correct choice. Prolia scares the bejeepers out of me, so I'll try to avoid it if I can.
Ask your doc what he/she thinks about the number of lifetime infusions a body can stand. My scores were never too terribly bad, but because of the fractures, my doc felt Tymlos/Evenity would definitely give my old bones a boost. Sorry I don't have a perfect answer for you, just some history for what it's worth.
Have a great week, @hungrybirder and all! Cheers!
Well cheers back @beanieone, It was great to hear about your ongoingjourney. It seems to me that finding a good doctor who is up to date is the place to start. I think they are rare. And of course, at the beginning we tend to be clueless and believe what we’ll told. I’ve had no problem with tolerating either Fosamax or Reclast. I’m hoping I can stay on Reclast another year or two. My latest endocrinologist suggested I read up on Prolia but I’m not sure she’s committed to it. We’ll see what the numbers say later this years. Thanks for sharing your history.