Hello, gcattnu39 (@gcattnu39)

I’m afraid I don’t have much to offer other than my understanding. I, too, have idiopathic polyneuropathy, but my PN leans more toward large fiber. What you and I have in common, however, is our sensitivity to cold (less so to heat).

For the longest time, I chalked up my sensitivity to getting older (I’m 79) and nothing more. But as time went by and I got to know others with PN—all varieties of PN—I discovered that a significant portion of us have such sensitivities, some to cold, some to heat, and some to both.

I have a dear friend who’s done months of chemo and tells me that she now has chemo-induced PN –– and, interestingly enough, is hyper-sensitive to cold. Only the other evening, she and I and a small circle of friends were having dinner; Denver’s early evening temp was something in the high 80ºs; those at the table with us were in cotton tops and shorts –– all but for my chemo friend and I: she and I were wearing zip-up sweaters. We were each asked maybe a dozen times, “Aren’t you warm in that?”

As I said at the top, I wish I had something to offer you other than my understanding and assurance that we are far from alone in our annoying sensitivity to cold and hot.

I wish you all the best!
Ray (@ray666)