Bob... I’ve resigned myself to live for the day and get the most out of it. I was very freaked out when I found out. It's been about 1-1/2 years now. After 3 months or so I just simple let go of the fear knowing that if it ruptures, which I have no control over, I won't die a long slow death which to me would be horrid.
I hope you find some relief. Maybe you could go to Msyo and see their team. The surgery I hear is very invasive and carries high risk... That's why they don't want to do if... Supposedly.
I agree with those that say if it's so rare why are there so many talking here on this site? I think lots of people go undiagnosed.
Has anyone been told what would have caused it? I wasn't. In one CT scan it wasn't even found and one year later, I had another CT for this right sided pain and that's when it was found.
Also since then I has a thoracic MRI of back and it wasn't indicated on those reports either. Seems like it would have since the Celaic artery is closer to our spine than chest ( per my doctor)