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Is my statin causing peripheral neuropathy?

Neuropathy | Last Active: Nov 5 5:32pm | Replies (152)

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@hookedongolf2004

My N came in overnight with Stage 4 sensory nerve damage snd 95% damage to my feet and toes, WHY? I was not on station and they put me on one.I had fallen and I had a concussion which was not known for about a month. It has been awful ever since. One cannot get into a neurologist in Tulsa. My EMG was the only time I was able to see one and then he would not take me again for neuropathy. I’ve been trying to get into Mail for a year and a half. How is it figuring out how you got it, is your neurologist able to determine that I don’t take pain medication other than a strong Tylenol as the others don’t seem to work and only make me feel horrible all over and a zombie I feel like most of the clinics are nothing but a way to make money with Medicare and are short term happy fix. My primary says you have an offer. He just got home and deal with it, and my new primary says don’t give up. We need to know why how do you find out why. how did you find out why?

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Replies to "My N came in overnight with Stage 4 sensory nerve damage snd 95% damage to my..."

Your health issues seem to be very different than mine. You fell and had a concussion. Your onset on N happened very quickly for unknown reasons.
I’m 71 and have always been extremely healthy and active with walking, hiking, biking, kayaking, and skiing a minimum of 100 days in the winter.
My on,y health issue has been high ldl cholesterol. My father had extremely high cholesterol and I guess I got it from him because I eat very healthy. My primary care physician (PCP) had put me on Simvastatin about 8 yrs ago which I had no problem with ever. Last Oct (2023) my ldl had risen a bit and my PCP changed my statin at the time to Rosuvastatin. A coup,e months later I started with tingling (pins/needles) in my fingers. I didn’t pay too much attention to it because it wasn’t very bad and I was doing my skiing thing! As time progressed, the tingling and pins/needles stated in my feet. At that point I went to my PCP who ordered bloodwork, cervical MRI, EMG and nerve conduction study.
On my own, in May, because I’ve always been so healthy, I went back to see what I’d done differently. My only thing was change in statin. I did my own research and discovered that Rosuvastatin can cause neuropathy. I contacted my PCP and forwarded the information I’d collected. She’d never heard of it before, but told me to stop taking the Rosuvastatin. All my tests she’d ordered came back normal, ruling out “long fiber” neuropathy. She sent me to a neurologist. After some testing in his office, different bloodwork, and discussing my history timeline, he agrees that my neuropathy is “small fiber” neuropathy and was cased by the Rosuvastatin. Unlike you, I never had any pain whatsoever, just the tingling, pins/needles and sone numbness.
It’s been getting better slowly. I’d say since I stopped the statin mid May I’m about 40% better! He assures me it should go away completely over time, even the little bit of numbness I have on three fingertips. .
That’s my story. I hope you find some kind of resolution with your N/P. I wish I could help you more. Take care and keep your chin up!