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Help with Chronic Fatigue Syndrome
Just Want to Talk | Last Active: Jul 16 4:21pm | Replies (62)Comment receiving replies
i am a male 79 years old and i am trying to find out what disease i have with the symptoms that i have and having many blood tests and many mri and xrays and on and on for over two years and doctors (6) tell me that all the tests show normal for all organs in my body......for over two years i have dry itchy skin, mood swings, joint pain and stiffness, hair loss, brain fog, 24 hour fatigue with zero energy, huge unexplained weight gain, and breast and under arm enlargement and one doctor even sent me the results of some test where at 11pm i took a little pill and had to be at clinic to have blood test at 8am the next morning and that result negative for whatever he was checking and in his report on the test he ended by wishing me luck in finding out what was causing all these symptoms and what has happened to my life as i had a business in which i could not function because of the 100 percent fatigue and weakness ....so...does anybody have any ideas? oh yes, none of these doctors which are heart, brain, stomach, endocrine, vein doctors have even tried to treat these symptoms nor any way try to heal me as if the machine dont tell them what is wrong they just simply do nothing and so where does that leave me.....thank you...jim
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Bless you. I am so sorry. The medical field has changed a lot since COVID. I think doctors and nurses are burnt out to be honest. Not to mention, short staffed.
A friend of mine has severe fatigue from having chronic fatigue syndrome & narcolepsy. She was put on prescription Xywav and it has helped give her more energy during the day. It has given her a lot of her life back.
Some things come to mind if I may ask?
1) Have you had all of your thyroid levels checked? TSH, T3 , T4 and Thyroid antibodies and antiglobulin? I had to go to an endocrinologist. My Hashimotos (Hypothyroidism) did not show up in the TSH, T3 & T4, but did in the other test. Hair loss, dry skin, joint pain and fatigue and a lot of the other symptoms you describe can go along with Thyroid Disease
2) Have you had COVID? It can cause hair loss, fatigue & brain fog. Long COVID can cause these symptoms to continue.
3) Have you had all of your hormone levels checked? Cortisol level? An endocrinologist can do this.
4) Have you had all your levels checked for autoimmune diseases? A Rheumatologist or some primary doctors will do this. Have you had your B12 & D3 level checked? These being low can cause joint pain and fatigue. Your primary doctor can check these.
5) Fibromyalgia & Chronic Fatigue Syndrome tend to go hand 'n hand. I have both. A lot of the symptoms you describe fit under these two. They are hard to get a diagnosis on because there is no test for them. They can only do tests to rule out MS, Rheumatoid Arthritis & Lupus. They palpate all the trigger points to see if you are tender/painful in those areas. Your primary doctor could run a sed. rate to rule out the 3 mentioned autoimmune diseases.
Sometimes you have to be a little assertive and say something like, "Do you think I could have an autoimmune disease?" "Can we do a complete panel and check for it please?"
I know how frustrating this can be. Don't give up. Praying for you to feel better and get a diagnosis and get treated.