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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 12 hours ago | Replies (6907)

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@misseddie

Hello! My name is Eddie. I have been dealing with fibromyalgia since about 2013. I always have pain... some days with less some days with more. Even though the pain is terrible, I feel like the memory loss is the worst part of fibromyalgia!!!!

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Replies to "Hello! My name is Eddie. I have been dealing with fibromyalgia since about 2013. I always..."

Me to memory loss is hard.

hi eddie, i was diagnosed with fibromyalgia and polymyalgia rheumatica almost 20 years ago and i still have chronic pain - some days worse than the others....i have been to a zillion doctors and taken a zillions pills....finally, Thank God 5 years ago my pain management doctor put together a cocktail that works for me....i take lyrica, hydrocodone (vicadin because percoset doesn't do a thing for me) and a long acting very strong pain med......i don't believe that we have to live in pain with all the chemicals that are out there unless you choose not to take anything (your prerogative)....i have been living in bed for all these years only getting out of bed to use the bathroom.......i only leave the house to go to my doctors appointments because it is still painful and it drains my energy just to get dressed and the trip there and back causes me to sleep for 1 to 2 days of sleeping to recover from going out for 2 hours....it just kills me when people say how lucky i am not to worry about going out, etc...........are they really so stupid?.....who would condemn themselves to living in there bed, not being able to cook or clean or do anything at all....people should really learn to watch what they say because they are very hurtful words.........the brain fog and memory loss is horrible, but i have come to live with that as well because i don't have any other choices as this point....i wish you well eddie and hope you can find a good pain mgmt doctor who will listen and help you. good luck!