← Return to I keep relapsing when I try to get off prednisone

Discussion
Comment receiving replies
@dadcue

The 7 mg barrier is hard to get past. I had problems at that dose of prednisone too.

My rheumatologist said 3 mg would be acceptable and that dose would be "relatively safe" and wouldn't cause too many problems. I needed to stay on 3 mg for six months until my cortisol level improved before I allowed to taper off prednisone.

My PMR symptoms have been well controlled but the side effects of long term prednisone use took years to improve. Don't expect the side effects of long term prednisone use to go away too soon.

After I got off prednisone there were side effects of long term prednisone use that I didn't know I had. Those side effects were discovered by my endocrinologist. Metabolic side effects sometimes never get better according to my endocrinologist. I'm working on the metabolic problems with lifestyle changes. Diet and exercise are very important. At least I have the energy now to exercise more.

It takes a long time to make a complete recovery. Things do improve over time. I have been completely off Prednisone for 3 years. I still have room for improvement. I still see a rheumatologist. I'm still being treated for PMR and other rheumatology problems.

Jump to this post


Replies to "The 7 mg barrier is hard to get past. I had problems at that dose of..."

Thank you for your valuable info. I'm on Mounjaro these days and it has helped a lot with my diabetes which of course the Pred made much worse. Also helping with my ravenous appetite I developed after starting Pred. When I got down below 10 mg my bloody red demon eyes went back to normal and also my puffy face. Even the awful almost solid purple bruises on my hands and forearms started fading. I don't mind getting old but I hate looking like a goblin. lol