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Thyroidectomy or not?

Thyroid Cancer | Last Active: 14 hours ago | Replies (10)

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@armichic

I would say don’t dance with the devil. They cannot make a definitive diagnosis until they evaluate the entire goiter/ tumor upon removal. At this point it’s only a probability of ID. Mine was missed in 2019 at 4cm based on a presumptive ID and low probability (which is very subjective). It doubled in size in 4 years and the presumptive ID of follicular by one laboratory and oncocytic/ Hurthle cell carcinoma by another and was rated as 40-60% probability by 2 different laboratories with a comment it was unlikely a carcinoma and more likely an adenoma because that type was so rare and I had no family history . Upon removal it was confirmed as just that by 3 different laboratories. If they had done their due diligence in 2019 I might have been able to get a partial thyroidectomy and avoided medication which is causing all kinds of side effects. Although papillary is the “best” of the thyroid cancers to have I personally wouldn’t leave cancer in my body but I’ve also been a laboratory scientist 24 years so I understand the meaning of the results and the risk of metastasis. In the end it’s your decision but if you leave it it will grow and you may have to take the whole thing out.

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Replies to "I would say don’t dance with the devil. They cannot make a definitive diagnosis until they..."

Thank you for this.

I had them take the whole thing. The pathology is back, confirming the
1.5cm nodule with NO cancer on the margins, no spread to any nodes---so,
they 'got it.', it would seem, which of course is great. No regrets (as it
wouldn't matter) re holding out for a lobectomy though in retrospect it
sure appears that might save me the medication not to mention the
possibility of radioactive iodine treatment, which I still hope to avoid.
I hope this fretting and thinking is of some value to those who are
contemplating action. I am supposing I 'got lucky' with the contained
nodule. The surgeon certainly did a clean job. Only pain is the
to-be-expected sore throat from the damned air tube.

Best to all out there.

Hugo