1. < Gynecologic Cancers

Vulvar melanoma: What treatments did you have?

Posted by canadaigua @canadaigua, Mar 6, 2023

I've been diagnosed with vulvar melanoma and had surgery for removal. It's not in lymph nodes and they got it all but the 2nd pathology report said there was a stringer. My oncologist recommends
immunotherapy. Is this a normal process.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Mentor
Helen, Volunteer Mentor | @naturegirl5 | Jun 19, 2024
In reply to @dgboahn1 "I hope everything goes well with you. Looks like this was in September? Mom is 91..." + (show)
@dgboahn1

I hope everything goes well with you. Looks like this was in September? Mom is 91 and just diagnosed with Vulvar Melanoma, which Included a tumor high up on the vagina wall. Getting a pet scan on July 1. She thinking about no treatment. Can you tell me how it’s gone for you and how old you are. Thanks.

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@dgboahn1 I noticed that you are new to Mayo Clinic Connect. Welcome and I hope we can helpful to you as we share our experiences and support.

A PET scan will provide your mother and her oncologist with the information she needs to make her decision on what she would like to do - treatment or no treatment. Do you go your mother's appointments with her?

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1 reply
dgboahn1 | @dgboahn1 | Jun 19, 2024
In reply to @naturegirl5 "@dgboahn1 I noticed that you are new to Mayo Clinic Connect. Welcome and I hope we..." + (show)
@naturegirl5

@dgboahn1 I noticed that you are new to Mayo Clinic Connect. Welcome and I hope we can helpful to you as we share our experiences and support.

A PET scan will provide your mother and her oncologist with the information she needs to make her decision on what she would like to do - treatment or no treatment. Do you go your mother's appointments with her?

Jump to this post

Yes, I do and I have pretty good medical experience so I am able to help her understand what is being said as she is also hard of hearing.

REPLY
dgboahn1 | @dgboahn1 | Jun 23, 2024

My mom is 91 And just diagnosed with uvular Melanoma And has a tumor in vaginal wall. It is a rare cancer. Just wondering if Anyone here has undergone treatment, your age, and hell that has gone for you. I would appreciate any input. Thanks, Debbie

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 3, 2024
In reply to @dgboahn1 "My mom is 91 And just diagnosed with uvular Melanoma And has a tumor in vaginal..." + (show)
@dgboahn1

My mom is 91 And just diagnosed with uvular Melanoma And has a tumor in vaginal wall. It is a rare cancer. Just wondering if Anyone here has undergone treatment, your age, and hell that has gone for you. I would appreciate any input. Thanks, Debbie

Jump to this post

Hi @dgboahn1, I moved your question about treatments for vulvar (vaginal wall) melanoma for your 91-year old mom to the Gynecologic Cancers support group, specifically to this existing discussion:
- Vulvar melanoma: What treatments did you have?https://connect.mayoclinic.org/discussion/vulvar-melanoma-treatments/

I did this so that you can read previous posts and connect easily with fellow members like @canadaigua @kanderstag @caga who have experience with vulvar melanoma.

Debbie, what treatment options have been suggested for your mom? How is she doing?

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