Hi Ava, oh my gosh, gurl! What a way to start out a new life together as a married couple. MDS is not the wedding gift you were hoping for…but it is a gift that keeps on giving, that’s for sure. Well, remember in your vows where you promised for better or for worse, sickness and in health…
You’re covering those two right from the get-go and after that it should be clear sailing. I hope you can bet back to the Bahamas for a 2nd honeymoon when this next adventure is over.
I had MDS’s ugly step sister, AML, which is something your high risk MDS could phase into so that’s why you’re having the stem cell transplant. It’s much better to do it now! I also know what it’s like to go into this knowing nothing, that’s why I’ve made it a mission to help anyone else having to go down this road.
We have very active discussions in the forum with those of us who have had transplants. This would be a good place to start where you’ll meet @alive @edb1123 @kt2013. @jenmkr63 @timt347 @jrwilli1 @tkidd51 @katgob and many others.
My bone marrow transplant story; Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
@mary612 started this discussion with her husband’s journey. He had his transplant almost 2 weeks ago.
Husband facing a stem cell transplant https://connect.mayoclinic.org/discussion/husband-facing-a-stem-cell-transplant/
I know what a hectic time this is for you with planning for a long stay, what to expect from the transplant and all those goodies. If you’re interested I can give you links to what to pack, useful items to take with you, post transplant guidelines, etc.. My transplant was in Mayo-Rochester so I don’t know much about lodging in Jacksonville. But I do know you’ll be in excellent hands with your Mayo bmt team.
Is there anything in particular I can help you with?
Hey, that would be great if you could share what to pack. I have no idea what to do!! Thank you so very much!!
Ava