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@rstel7272

Have you considered an NTM clinic like at NJH, Mayo or one of the others?

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Replies to "Have you considered an NTM clinic like at NJH, Mayo or one of the others?"

After reading the responses on this Mayo MAC patient's personal experiences, I have learned more than in the four years I saw the local pulmonolgist.
Apparently, not all pulmonolgists are experienced in the diagnosing of MAC lung disease. I just accepted what the first pulmonolgist I saw told me.
When I was recently hospitalized for pneumonia, the hospital pulmonolgist reviewed my records and he didn't think that I have MAC and he was going to do additional testing, however, he was not in my insurance network so I got another referral from my PCP to see a different pulmonolgist in July.
Hopefully, he will be able to review all my records and tell me what I need to do.
I'm grateful for the responses and information here as now I feel more enlightened about this disease, thanks to Mayo.