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DiscussionAnyone been mistakenly diagnosed with MAC Lung disease but not MAC?
MAC & Bronchiectasis | Last Active: Jul 19 11:19am | Replies (31)Comment receiving replies
Replies to "Have you considered an NTM clinic like at NJH, Mayo or one of the others?"
After reading the responses on this Mayo MAC patient's personal experiences, I have learned more than in the four years I saw the local pulmonolgist.
Apparently, not all pulmonolgists are experienced in the diagnosing of MAC lung disease. I just accepted what the first pulmonolgist I saw told me.
When I was recently hospitalized for pneumonia, the hospital pulmonolgist reviewed my records and he didn't think that I have MAC and he was going to do additional testing, however, he was not in my insurance network so I got another referral from my PCP to see a different pulmonolgist in July.
Hopefully, he will be able to review all my records and tell me what I need to do.
I'm grateful for the responses and information here as now I feel more enlightened about this disease, thanks to Mayo.