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Esophageal Lichen Planus

Autoimmune Diseases | Last Active: Oct 11 2:53pm | Replies (108)

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@lsab

I have had it for many years. I have had many dilations. Strictures made it so I couldn’t swallow anything. Once I had blockage by a single kernel of corn. No medicine seemed to resolve the issue. Now I am on meds for other issues and the ELP has resolved somewhat. It now only rarely causes problems. I’m worried my Dr who treats me will retire and I’ll be stuck again with Drs who have no clue about this problem and how only a paediatric scope will work on me.

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Replies to "I have had it for many years. I have had many dilations. Strictures made it so..."

@lsab I can understand why potentially having your doctor retire would cause you some anxiety! Me, too! Can you possibly bring up this subject with your doctor (maybe he wants to take a long vacation and you need help while he’s gone). Ask if surgery or treatment rooms keep a log (or something like it) that lists patients who need special equipment and what the equipment is. I’m sure you can think of more things!
Whenever you have a blockage, do you go to the ER? What is the protocol when you do show up needing help?

I advise you to talk to your doctor and recommend a younger doctor. Have your current doctor talk to him and for the younger doctor to be present at your scopes. I am bringing this up because my doctor of over 20 years passed away on me. He told me when he got ready to retire he would discuss my case with the other doctor as being a complicated case. My doctor died in his sleep. It has been two years still having doctor problems. Plus we are looking at moving so it will be more problems.

May I ask what is your other condition and what medication are you taking for that which is helping your esophageal Lichen Planus?
Yes finding a good doctor is daunting.
Unfortunately there doesn't appear to be a cross the board 'auto immune specialist'. So many of us have multiple manifestations which require a variety of doctors :/
These are the conditions I have in order of manifestation:
Allergic rhinitis (early adult)
eczema
psoriasis
lichen planus on skin (50's)
lichen planus in mouth
lichen planus w strictures in throat (late 50's)
Psoriatic arthritis pain in hands feet (60)

Thanks in advance for sharing the medication that appears to be helping your ELP!