I did not have standard radiation. I was/am not eligible for surgery. I found the following article and contacted MSK.
https://www.mskcc.org/news/high-dose-radiation-offers-hope-people-inoperable-pancreatic
This is not standard SBRT. I stayed in NYC for a month and received this treatment daily. No side effects. Soooo much easier than chemo. Initially markers went up but eventually dropped rapidly. All believe the primary tumor to be dead. There has been no change in over a year. Kept me off chemo for 6 mos until a tiny spot showed up in my liver. So I had to get back on chemo. Because the spot was near my stomach, doctors were concerned but neither the local doctors nor the comprehensive cancer center where I get chemo would touch it. So I reached out to MSK who gave me a couple options. One was a Y90 procedure. My understanding is it’s a radioembolization procedure where radioactive beads target the tumor sparing the remainder of the organ. I was tired initially but no other side effects. That was done at the end of May. I will have follow up in July. Again, markers are all over the place. I was offered a break from chemo but decided I will have the chemo at a reduced dose until I see the scans. If everything looks good and markers continue to drop, I will take another break from chemo.

As everyone in this blog has suggested, if at all possible, go to a pancreatic cancer center like MSK, MD Anderson, Mayo, John Hopkins. Anywhere else just gives “standard” care and unless you bring up options on your own that’s all you will get. I’m fortunate that my oncologist at the comprehensive cancer center is willing to collaborate with MSK. I live in Ohio and went to 3 different oncologists here before I found the one in PGH who thinks outside the box and will collaborate with MSK. I have to snail mail everything between doctors which is crazy in this day and age but it’s been worth it. If MSK was closer I would definitely do everything there. I’m fortunate that my health allows me to be able to make the one hour flight for treatments outside of chemo.