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← Return to Stage 4 GEJ: Should we switch to MAYO?
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Stage 4 GEJ: Should we switch to MAYO?
Esophageal Cancer | Last Active: Jun 23 11:53am | Replies (5)Comment receiving replies
Welcome, @nora89. I'm glad to hear that you've got an appointment scheduled at Mayo Clinic in Jacksonville. You and your husband will be in good hands at Mayo Clinic. I'm tagging a few members who have experience with esophageal cancer and treatment at Mayo Clinic, some of them at the Florida campus, others in Minnesota or Arizona.
Nora, what treatments has your husband had? How is he doing? How are YOU doing?
Replies to "Welcome, @nora89. I'm glad to hear that you've got an appointment scheduled at Mayo Clinic in..."
Hi Colleen!
He's currently on FOLFOX + Opdivo. He only had 2 rounds and we hope that there wouldn't be a delay in his treatment when we switch him to Mayo Clinic. We're not sure how well he's responding to that treatment because it's too early.
He's doing well and to me he's a true hero. Chemo is quite brutal, he sleeps for 3-4 days straight, but than he bounces back. The rest of the family is stressed out, we're researching non stop and we're trying to find right information and resources. He is our everything and we want to see him get well and thrive in life 🙂
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I highly recommend Mayo Clinic - Rochester, Minnesota - where I was treated last year with excellent results.
I had two months of FLOT chemo followed by 25 radiation sessions (plus 3 more chemo treatments) and then an Esophagectomy.
I had a feeding tube for 8 months as I could not swallow originally, then chemo and radiation messed up my taste buds.
My doctors - the Mayo doctors - are experienced, skilled, and caring as are their staffs.
I moved to Rochester to have my treatment, the best decision I made.
The whole EC experience is very challenging, but you will fight your way through it.
You will be happy if you choose to go through that fight with the Mayo professionals.
We can visit if you want.