I get it. I feel so frustrated also. I just heard about that liagment disease. I feel that I cannot get anyone to take my condition seriously which is ridiculous when it's so serious. Since it's rare and perhaps they don't take know much about it, then send me out of state so I get an accurate diagnosis.
Was your pain chronic, deep and feeling as though you are being squeezed? Mine is that way and also under my ribs on the right side and deep on the side of my right waist.
I hope you get some relief.
Have you thought of calling to get an appointment with Mayo or another big hospital/clinic?
Sometimes I think of doing this.
Best of wishes on your journey to health!

I have a 14mm celiac artery aneurysm on a 7mm artery and found by a CT I have Gastropareses also and GERD I was on Prilosec for about 10 years way to long! Was going to have the Wrap to solve it but a snowstorm happen and it got put off. I was told I could get off the Prilosec after the operation. So, I decided to do it ahead of time since over the 10-year period I had been on way too many drugs that were not fixing anything? My GERD got under control once off the Prilosec so I stopped the operation since they said it may not work and could cause more problems. I am pretty upset about all the wrong things done to me over the years like being treated for COPD and not having it. On 3 inhalers till I was so sick I gave up and quit all my drugs and then got a lot better. Doctors are not happy with me but I feel the same about them right now. This Gastric problem was so bad with all the Small Intestine Bacterial growth's and just more antibiotics to solve it. Those have gone away now I breath so much better, but the chest pain is still there? I use Lidocaine for it and swallow it sometimes 3 times a day for the pain. I got off the 7.5 Hydrocodone's 4 times a day they had me on for pain due to all the problems it caused!! I feel the celiac artery aneurysm is the cause of my pain or MAULS just living in a Rural Area I was blown off when they found it and said to dangerous to fix and we will watch it. Then they forgot about it. I have a new doctor I will see doon and a 100% Disabled Veteran with PTSD too so the care I have got on the inside and outside has been substandard to say the least. They have cut a duct on my Pancreases and were surprised I got better so fast but it was because of all the Dreon I was taking that I stopped. It was not needed another drug they were trying. I am scared to have them treat me anymore over all this. Filled a complaint and was told this is how we do stuff to find answers. Well, the celiac artery aneurysm to me may be the whole problem I so not want to wait for it to burst and going to try to have it looked at again by the new doctor. I am 70 years old 5' 5" and 130 lbs I lost 30 lbs in a year once from 150 lbs not eating right. Now off the Prilosec I can eat better just wish they said do that on and how to do it. I started taking the pills apart and making them smaller for many weeks till off them. That worked but cold turkey was horrible to do but this worked without the acid overload. I read a lot on this, and I know it is rare, but the pain is a problem. They have looked inside me both ends many times and see nothing wrong? It is time for the celiac artery aneurysm to be corrected and a real doctor to deal with it that knows what to do. Been a long post but so has my journey to get better! Was hoping to hear those others have gone thru what I have here so I joined. Thanks for any help. Mark