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Cytokine Release Syndrome/Polymyalgia Rheumatica

Autoimmune Diseases | Last Active: Jul 1 3:27pm | Replies (13)

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@tsc

I read that it's rare, but some people can have GCA without the usual high inflammatory markers, CRP and ESR tests. Here's an article that discusses it:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8900556/
In my own case, I've always had an elevated CRP and ESR when I've had GCA.
We often have to be our own advocates and just keep pressing our doctors for answers.

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Replies to "I read that it's rare, but some people can have GCA without the usual high inflammatory..."

I am pursue this at this time just waiting for the MRI to check what's going on. The ophthalmologist doesn't believe its GCA but she does strongly suspect something is wrong cause she stated there is strange activity going on so will wait to see. My Fingers & eyes are crossed LOL
Also thank you for this discussion link.
I will be presenting this to my doctor.

Thanks so much 🙂