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Cytokine Release Syndrome/Polymyalgia Rheumatica

Autoimmune Diseases | Last Active: 3 days ago | Replies (13)
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@johnbishop

I'm wondering if some of the severe headaches you mentioned could be an indication of Giant Cell Arteritis (GCA). When my PMR was active my doctor and rheumatologist were always asking me if I had headaches, tender scalp or any pain in the temples or jaw areas. You might want to read through the following article to see if anything sounds similar.

-- Giant Cell Arteritis: Advances in Understanding Pathogenesis and Implications for Clinical Practice: https://www.mdpi.com/2073-4409/13/3/267

@tsc has some experience with GCA and may also have some thoughts.

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Replies to "I'm wondering if some of the severe headaches you mentioned could be an indication of Giant..."
nuturecures | @nuturecures | Jun 22 2:24pm

That's what I've been trying to get the rheumatologist & my Doctor & now the ophthalmologist to understand & they are sticking to standard protocols, it could be to rule everything else out, I am not sure cause they haven't stated anything to lead me to this conclusion. However, The Ophthalmologist has shown me a different set of thoughts on this even though she doesn't feel its GCA, however she's not entirely ruling out that possibility.
Till the blood work & MRI come back with the results, I cant really say or do much until then except pray & hope they find the causes.

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