Osteoporosis Drugs - Managing joint pain side effects

Posted by karel @karel, Jun 12 8:01am

CAN SOMEONE WHO HAS BEEN ON BONIVA OR FOSAMAX AND HAD HORRIBLE SIDE EFFECTS , IF THEY TOOK ANYTHING TO COUNTER REACT ALL THE JOINT PAIN. I TOOK 150 MG. PILL OF BONIVA ILANDROATE, ON SATURDAY.5 DAYS LATER . HIP PAIN IS WORSE.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

I'm out of my depth here but I think the only thing that helps outside of acetomenophen is steroid. Usually this effect subsides within a week. I hope you contact your provider. None of us with osteoporosis wants steroid, but it might be an option with a short course if you continue to suffer. You'll surely get better responses from those with experience.

REPLY

Sorry to say @karel but Keith McCormick, in his bookd "Great Bones," says he does not recommend Boniva because among all the bisphosphonates, it has a "worse track record for adverse effects."

I hope this passes. Magnesium and curcumin have been suggested for me for inflammation from a different cause.

If you need a bisphosphonate, there are Fosamax, Actonel and Atelvia. McCormick seems to like Atelvia but he himself did Fosamax after Forteo.

REPLY

I was allergic to Fosamax and Risedronate. Horrible brain fog, muscle pain, and generally feeling ill. The second drug I’d been on for 7 weeks so the effects lasted about 6 weeks! Yuck!! and Ouch!! Now I’m told I have to have monthly infusions.

REPLY
@donnahanford933

I was allergic to Fosamax and Risedronate. Horrible brain fog, muscle pain, and generally feeling ill. The second drug I’d been on for 7 weeks so the effects lasted about 6 weeks! Yuck!! and Ouch!! Now I’m told I have to have monthly infusions.

Jump to this post

What drug are the infusions?

REPLY
@donnahanford933

I was allergic to Fosamax and Risedronate. Horrible brain fog, muscle pain, and generally feeling ill. The second drug I’d been on for 7 weeks so the effects lasted about 6 weeks! Yuck!! and Ouch!! Now I’m told I have to have monthly infusions.

Jump to this post

I am really sorry to hear about what is happening to you.
I don't know your personal health situation but if you are able to exercise and can afford the time and expense to adjust your diet there is hope.
I did take fosamax for 7 months but it made me feel very stressed so I have put my efforts into diet and exercise.
Even when I gained some improvement the endocrinologist put it down to my resumption of taking hrt and wanted me to continue.
I am going to continue my exercise in the hope of further improvement, I just hope I can keep active enough.
I'm currently 63.
You may of course be well advised to seek a suitable medication, I am not trying to persuade you otherwise. The problem is the medical establishment would have it that drugs are the only way and that it is impossible or unlikely you can build bone.
This is not true. I have an improvement from -4 for my spine, to -3.6, some way to go. Luckily my hip and femoral neck are better, back into osteopenia range.
Good luck and I hope you can find a peaceful path forward.

REPLY
@sharon31

I am really sorry to hear about what is happening to you.
I don't know your personal health situation but if you are able to exercise and can afford the time and expense to adjust your diet there is hope.
I did take fosamax for 7 months but it made me feel very stressed so I have put my efforts into diet and exercise.
Even when I gained some improvement the endocrinologist put it down to my resumption of taking hrt and wanted me to continue.
I am going to continue my exercise in the hope of further improvement, I just hope I can keep active enough.
I'm currently 63.
You may of course be well advised to seek a suitable medication, I am not trying to persuade you otherwise. The problem is the medical establishment would have it that drugs are the only way and that it is impossible or unlikely you can build bone.
This is not true. I have an improvement from -4 for my spine, to -3.6, some way to go. Luckily my hip and femoral neck are better, back into osteopenia range.
Good luck and I hope you can find a peaceful path forward.

Jump to this post

Im already wheel chair bound from not being able to have both knees operating on as I caught shingles for 6 years, and my immune system is done. I dont heal well, doctors only give me a 2% chance of standing. While I can walk with a can about 1/2 block, basically Im in the chair. I was always osteopenia, but dexa scan now shows osteoporous in left hip. Said its at 14%. After the Boniva my ribs and hip were so painful, I could not sit, plus I have Narcolepsy/Cataplexy which I get attacks from pain. It was a horror. I for now decided to just not take anything and be careful when I do stand. I have too many other morbidities. I take 23 pills a day, and they all know where they have to go. So Im just leaving well enough alone. I will see my next dexa scan and see if there is a drastic change. But I live in a senior development and they have different exercise classes all day, so Im going to start them at least improve the upper body strenght. I wish everyone luck. Arthritis is so painful no matter what. Bless us all!

REPLY
@ripley

What drug are the infusions?

Jump to this post

@ripley is sounds like the infusions may be Evenity...but those are injections. @donnahanford933 do you know?

REPLY
@windyshores

@ripley is sounds like the infusions may be Evenity...but those are injections. @donnahanford933 do you know?

Jump to this post

I am trying to connect with the Mayo Clinic re inability to correctly place
the verification code in order to see replies to my topics.
I believe that this is going straight to
@windyshores” whom I don’t want to bother with this. Any suggestions for
me? I’m technically challenged though I did try to do as directed with the
help of my son.
Sincerely,
Donna Hanford
209-213-9879
PS I don’t always keep up perfectly with my emails as I am disabled and in
chronic pain. Texts are always responded to (I apologize for ending with a
preposition lol🤪)

REPLY
@sharon31

I am really sorry to hear about what is happening to you.
I don't know your personal health situation but if you are able to exercise and can afford the time and expense to adjust your diet there is hope.
I did take fosamax for 7 months but it made me feel very stressed so I have put my efforts into diet and exercise.
Even when I gained some improvement the endocrinologist put it down to my resumption of taking hrt and wanted me to continue.
I am going to continue my exercise in the hope of further improvement, I just hope I can keep active enough.
I'm currently 63.
You may of course be well advised to seek a suitable medication, I am not trying to persuade you otherwise. The problem is the medical establishment would have it that drugs are the only way and that it is impossible or unlikely you can build bone.
This is not true. I have an improvement from -4 for my spine, to -3.6, some way to go. Luckily my hip and femoral neck are better, back into osteopenia range.
Good luck and I hope you can find a peaceful path forward.

Jump to this post

What exercises are you mostly doing? I’m brand new to this and SO confused. I bike, walk a lot, lift lighter weights, do yoga, etc.

REPLY
Please sign in or register to post a reply.