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Cytokine Release Syndrome/Polymyalgia Rheumatica

Autoimmune Diseases | Last Active: Jul 1 3:27pm | Replies (13)

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@johnhester

I too am frustrated with doctors that do not listen to me about my daily pains and not understanding what does not work and willing to work with me to try something new. Since you have rightly lost faith in your doctors have you search for other doctors. I all else fails, I would go to the emergency room, but not tell the ER doctor about the problems you are haveing with your current doctors. Most doctors are reluctant to counter the opinions of other doctors that have treated you. Good luck find solutions.

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Replies to "I too am frustrated with doctors that do not listen to me about my daily pains..."

I did go to the emergency also when I was having sever temple pain & visual issues but the attending physician stated she didn't feel that a temporal Biopsy was required because the blood work didn't show the minimal inflammatory markers to support such a procedure, so I thanked her & left.
Since then I have seen an ophthalmologist who is still investigating the possibility of GCA Presence, I had the blood work & am now waiting for an appointment to have an ultra sound on my eyes & arteries so that's something.
I just left my regular physician who I loved so much because she did what I needed her to do upon request, however she herself has severe health problems that interfered with her duties to a point I & my entire Family wasn't getting referrals fast enough in critical situations.
I really hated to leave her Practice, I even lectured her in from of her staff & in private about her ongoing health issues that posed a dangerous situation for her due to her heart condition & multiple surgeries on her back then return to work the following day as if nothing happened & told her she's no good for her patients if she isn't looking after herself.
NOW after I left her practice, she had a stroke.
This is heartbreaking, I seem to encounter physicians like this often & many are so over worked many are not fulfilling their obligation to the patient because Doctors are in distress themselves & this is a frightening trend to say the least.
I will wait to see the results of the tests my Ophthalmologist has ordered before I do anything else & will advice my doctor to halt any prescription drugs till all investigations have been exhausted & or he prescribes the medications I find would be more appropriate too my intolerance to high dose medications. Thank you for your response & Advice, its much appreciated.