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My mom can't walk, doctor's don't know why
Autoimmune Diseases | Last Active: Aug 28 9:19pm | Replies (60)Comment receiving replies
You responded to someone else on the thread but I assume you were asking me.
It's been difficult. I'm trying to keep faith and being positive for her sake, but I cry every night, but crying helps me.
The doctor here thinks he's found the answer. Sleep apnea. Her carbon dioxide was very high.
We've suspected that she has had it for quite a while because she snores and is a bit overweight. But I'm not sure if sleep apnea can suddenly do all of this. Unless there's another part of it that we haven't found. But mom is going to a rehab today and they will give her oxygen each night and we can see if it helps. If not, the doctor wants her to come back.
Mom has never wanted to use a CPAP at night. That's like her worst nightmare. Now she has to if she wants to walk again, according to the doctor. So seeing her depressed and crying over this new development is hard. But there are alternatives to the CPAP if it does fix her. There's a device called inspire which is a mask-less device. So hopefully she can qualify for it. This also is our wakeup call to buckle down and lose weight.
Replies to "You responded to someone else on the thread but I assume you were asking me. It's..."
@ablack2008
I am a mentor and replies still mess me up, reply or am I replying to a reply ....
I hope your mom is willing to try CPAP, they have come along way and there are different type of mask. It will be uncomfortable at first but she will get use to it.
I have a friend who has inspire device. She had severe sleep apnea. She got approved prior to being on Medicare, but to get approved on her private insurance she had to have sleep tests that proved the CPAP machine did not improve her breathing enough.
Your being a great daughter, but remember, you can only help your mother if you take care of yourself.
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Look it can make her feel energetic once she gets oxygen! The hypoxia can cause heart attack or stroke. Plus, Cpaps have come a long long way.
You can use nasal pillows now, instead of a mask & it just forces your airway open if you stop breathing.
It’s so wide & soft, you don’t feel like anything is in your nose openings !
Plus hypertension goes away too often after use of Cpap at night!
But if they have not run a. MRI of the c-spine, see if the Doc can, b/c by her positional symptoms, being fine & then getting worse, that often happens when the nerve is compressed more, so lifting, pushing , carrying groceries or laundry can bend the neck & that would cause her to be fine & then get worse! That’s probably why docs were previously testing for orthostatic hypotension!
The reason I know, is b/c I’ve been there, and was shuffled around, until I saw on an MRI cord compression at C4-C5 and subsequent surgery to lift the disc off the cord relieved all the symptoms!