Too slim to have reconstruction after a partial mastectomy: Options?

Posted by brightside21 @brightside21, Jun 21, 2024

I'm diagnosed IDC stage 2, Er+, Pr- , Her2 Neg.
Surgeon wants me to have a single wide excision / partial mastectomy with tissue sparing .
My issue is I can not have a flap reconstruction to replace the large wedge that's removed in this op. This is because I'm very slim & don't have enough fat & tissue. I asked can I have an implant instead & was told there are no implants for the size I'd need.
Which means I'd finish with my breast being majorly smaller than my other breast.
I was then told that my only option is to a year later have my non cancer breast reduced too to become equilant to the operated (cancer) breast.
I'd then end up with both breasts extremely small.
I'm presently a 32 DD cup, my surgeon expects my single cancer breast to become a 32 A cup size.
I do not want to end up with such tiny breasts nor do I want a partial mastectomy with NO reconstruction but I'm not being offered anything.
Help & Advise needed please.
What can I be offered ?
I can't have ANY Flap ops because I've not enough fat & tissue, I'm just too slim. Advise, please.

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Is your IDC lesion so large that he really needs to take out that large a wedge? I was a 34 DD. The surgery I had was called a segmental mastectomy and oncoplastic reconstruction as well as mastopexy on other breast for symmetry. The oncology surgeon removed the cancer in one breast then the plastic surgeon stepped in and did the reconstruction and mastoplexy. Entire procedure was 3 1/2 hours, outpatient.
I am now 34C, although personally I would have been okay if I was smaller. I was tired of dealing with the overlarge breasts- but that’s just me.
There are different types of surgical cuts, my doctor did the “wise” protocol. It’s like cutting an upside down W, removing two triangles of breast. He did not use any other fat or skin to form the new breasts, just a reduction of what was there. My cancer was at 9:00 in the lower outer quadrant. The surgeon explained that when he needs to remove more tissue from one side, he just shifts all the tissue over. So the W shape on that side wasn’t symmetrical- but the finished breast is equally rounded.
I had an “anchor” surgical scar, the nipple was moved up, and I have a suture line straight down from the nipple to the inframammary fold, and a suture line the full length of that fold.

It seems like your surgeon could add an insert on the one side to increase the breast from an A cup to a C? Then do a mastoplexy on the other breast to reduce it from DD to C. Although that may not be a satisfactory size.
My sister did get an insert that was a D cup after BC surgery - needed to use an expander to stretch the skin enough to cover it. But maybe there isn’t a DD size?

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Love the above answer- very thorough. All of our specific situations are so different- and future treatments/radiation etc. A second opinion is not a bad idea especially if you’re just not getting data that makes sense to you. It might be that your current surgeon isn’t explaining things well or it might be that they just are not well educated in breast surgery and options. I’d work with a very very reputable plastic and reconstructive surgeon in conjunction with your current (or future) breast oncology surgeon to get the best results. It might not be reasonable to immediately (or ever) return to a 32DD on your cancer side- even with mastectomy (skin and nipple sparing if possible?) and tissue expander reconstruction. But a segmental mastectomy on cancer side with opposite side reduction for symmetry is often done. Best to you- keep reaching out to your team for answers.

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If this were me, I would get a second opinion. If the second doctor gives you the same answer, then you know that is just the answer to what might be available, for your cancer. If your second doctor has different options for you then you might want to swap surgeons.
I would be sure to ask about long term expectations from whatever my choices are. I looked at what I needed to do to buy a few years and didn’t think about what my choices would look like 20 years out. I have been sorry I took what they offered and didn’t push for the flat bi-lateral mastectomy that I wanted.
You know the old saying about “if I knew I would live this long, I would have made better choices” hahaha.
Is there a breast specialty clinic close to you where you might get a second opinion (outside of your current medical group)?
Have you identified some options you could accept in terms of surgery?

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It was suggested that I have a simple mastectomy after my diagnosis. I was a 32A at that time and the tumor was the 9-12 quadrant. There was no way to do a lumpectomy. After discussing my options with my surgical oncologist and a plastic surgeon, I opted to do a bilateral mastectomy with immediate reconstruction. I went with expanders which included the addition of a mesh "pocket" for the implant which I could expand to the necessary size (which now has me at about a 34 C/D. Maybe have a conversation with a plastic surgeon for their opinion?

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@brightside21, I hope you saw the helpful responses from @auntieoakley @triciaot @bunnymoon and others. Have you discussed options with the plastic surgeon?

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JMHO, I had a right mastectomy, large breasts and opted for no reconstruction. I was late 60s at the time. I had a VLNT surgery 2 years later and opted for a DIEP flap as they had to open my abdomen (Amazon smile scar from hip bone to hip bone) and had lots of fat to use. Procedure failed sadly so am still one sided but the insert into my bra balances visually. What I found necessary was Balance, not size. Any opportunity to have balance is worthy. The size doesn’t matter imho. If you come away with balance and don’t have to mess with inserts to achieve balance well, that is GOOD outcome!

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I agree that's exactly what I want balance & symmetry is mentally & physically needed.
Sadly I've been given no options to achieve this without a 2nd op to my non cancer breast to do another reduction.
It would be far better to have a small reconstrution to the pre tumor breast after the wide excision. But as I've no spare tissue I'm NOT a candidate fir any flap proceedure. So have no options for reconstrution.

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DUMP THOSE DOCTORS!! I am thin as well, and couldn't get a diep flap. I was devastated because I didnt want "those implants". I felt cancer was foreign and killing me, so I was anti anything foreign. Later I calmed down, and started listening to other options. I'm a 36 C, and told my Plastic "he better get me back there". He smiled & agreed. Now they are implants with fat transferred from my body to fluf them up more. They are Gorgeous, & I fit all my old clothes. Even my sexy V-cut dresses. I am happy I chose a plastic that HEARD my concerns. The one from NWMH didnt understand my pain. He just wanted to slap the implants in & move on. My plastic smoothed my fears, and LISTENED to me. I went into surgery trusting him.
I had Lobular cancer in left breast but didnt want to risk recurrence that would be too late. Lobular is sneaky & hard to detect. I had a bilateral masectomy. I wanted my breast to be the
size I was, and even. I didnt want to liik in the mirror and be reminded of cancer. I want to look like my pre-cancer self. Doing a double masectomy was a scary call. I didn't want to walk on egg shells, and do mammograms. My mind & heart couldn't take. I HAVE NO REGRETS. Everyone tells me they are cute. I have no problem with saying "I kicked cancers ass & got some new boobies".

Your doctors are breaking your Spirit. This is a very hard cancer journey, and they sound like they're making it worse. There are tons of options, and they are blocking yours. Northwestern Hosp diagnosed me, but I went to City of Hope (formerly Cancer Treatment Centers of America). My Cancer journey was amazing Because I had positive, brilliant doctors. I strongly believe in Firing doctors. Follow their "energy"- listen to their advice, but be strong enough to seek another hospital/ doctor who can meet your needs.
Read articles, research, you will see there are so so many options that can help you. Tell them Thanks, but No Thanks! I wish I could go to doctor visits with you- then They will be missing a piece after I tear a hole in them 🤬 . Keep me posted.

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@leonielaw

DUMP THOSE DOCTORS!! I am thin as well, and couldn't get a diep flap. I was devastated because I didnt want "those implants". I felt cancer was foreign and killing me, so I was anti anything foreign. Later I calmed down, and started listening to other options. I'm a 36 C, and told my Plastic "he better get me back there". He smiled & agreed. Now they are implants with fat transferred from my body to fluf them up more. They are Gorgeous, & I fit all my old clothes. Even my sexy V-cut dresses. I am happy I chose a plastic that HEARD my concerns. The one from NWMH didnt understand my pain. He just wanted to slap the implants in & move on. My plastic smoothed my fears, and LISTENED to me. I went into surgery trusting him.
I had Lobular cancer in left breast but didnt want to risk recurrence that would be too late. Lobular is sneaky & hard to detect. I had a bilateral masectomy. I wanted my breast to be the
size I was, and even. I didnt want to liik in the mirror and be reminded of cancer. I want to look like my pre-cancer self. Doing a double masectomy was a scary call. I didn't want to walk on egg shells, and do mammograms. My mind & heart couldn't take. I HAVE NO REGRETS. Everyone tells me they are cute. I have no problem with saying "I kicked cancers ass & got some new boobies".

Your doctors are breaking your Spirit. This is a very hard cancer journey, and they sound like they're making it worse. There are tons of options, and they are blocking yours. Northwestern Hosp diagnosed me, but I went to City of Hope (formerly Cancer Treatment Centers of America). My Cancer journey was amazing Because I had positive, brilliant doctors. I strongly believe in Firing doctors. Follow their "energy"- listen to their advice, but be strong enough to seek another hospital/ doctor who can meet your needs.
Read articles, research, you will see there are so so many options that can help you. Tell them Thanks, but No Thanks! I wish I could go to doctor visits with you- then They will be missing a piece after I tear a hole in them 🤬 . Keep me posted.

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I hope I don't get in trouble for being so intense in my other response. In summary- get a 2nd or even 3rd opinion. Our state of mind impacts our healing journey.

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