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M. accessus treatments? Inhaled colistin

MAC & Bronchiectasis | Last Active: Jun 26 9:33am | Replies (19)

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@colleenburcar

Faye: Thank you for your kind response and prayers. I am a faith-filled person, too. Since I only have one colony of m. Abscessus my doctor doesn’t feel it needs treatment. However since I am so sick and have been taking levaquin which doesn’t seem to be doing much, he’s starting me on inhaled Colistin. I’ve read that usually treats pseudomonas which I haven’t been told I have. I’ll keep you posted and will pray for you, also.

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Replies to "Faye: Thank you for your kind response and prayers. I am a faith-filled person, too. Since..."

Coleen, levaquin plus the illness made me very weak with zero appetite. Make sure you drink a lot of water ( I soak ginger pieces over night and then add water throughout the day) buy also ensure plus ( I like vanilla) because it’s 350 cal and drink even two if you cannot eat. It’s so easy to lose weight when you are sick and we guard every pound. Stay strong during the treatment.

Colleen. I've never been prescribed Colistin for my pseudomonas. I've had Levofloxacin, Ciftazidime (via PICC line) inhaled Tobramycin and Cipro. If I do have M. Abscessus confirmed it will be at a level that I can just continue the AWC and "watch and wait." My pulm. wants to put me on brensocatib once it FDA approved, which should be this fall.