I was diagnosed with the same thing after my NCV/EMG. My whole body went numb on New Year’s Eve while lifting weights. I showed very little improvement for 5 months, but I am now seeing improvements. My toes are still numb, but they have been getting numb for over a year now. Like you, my neurologist is not very informative at all. I just saw him yesterday and he said he was pleased and not surprised that I am improving. I told him that he should have tried harder to convince me that I would improve at our visit over 3 months ago. He just kind of laughed and said come back to see him in a year. Frustrating!
Have you had any MRIs on your spine? I fully believe all of my leg weakness and numbness is from years of playing baseball and lifting weights. I have severe spinal stenosis in my lower back and more issues in my thoracic and cervical too. My pinky fingers still get numb occasionally especially when my arm is over my head when I sleep. When did your numbness start?
I know where you are right now. I was absolutely convinced I had ALS, and those dang neurologist do very little to reassure patients they have something else that my improve or be treatable. Hang in there, and force yourself to keep moving. I know how hard it is. My muscles were fatigued so much in the beginning that I would usually quit after half of my warm up sets. I basically never left my house for 4 months unless I had to.
I would make an appointment with a neurosurgeon or orthopedic spine doctor. Click on my name to read my other posts from the past few months. I have them posted in the spine health section.