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Celiac Artery Aneurysm: Anyone else with same illness?

Aortic Aneurysms | Last Active: Nov 16 12:44am | Replies (510)
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@onemind711

Hi, i was diagnosed with a 2cm celiac artery aneurysm 4 years ago. Im 57.

It is definately hard to find any recent research. I am going in this morning for my biannual CT angiogram, hoping that it hasnt grown. I was so glad to find this board because of its rarity and how its presence seems to linger in the back of my mind. I live in Utah so i had to go to Mayo once it was discovered. Originally it was for surgery because 2cm is the size which intervention is needed. They then said that it was only 1.4 cm wide and 2cm long, so i went on the watch and weight program.

Its not a diagnosis that sits well. They say that since there is not that many cases the data of rupture is just not available, but that the science behind the wall pressure and such makes watching less of a risk.

I dont get pain that often, but when i do its always a uneasy feeling and reminder when you know that the mortality rate if ruptured is high.

So, i guess we are just a special group of humans that must take life as a precious gift regularly. And do our follow-up as needed. Like i said, its been over 4 years and my lil guy hasnt grown at all, so maybe it never will and ill live to be a crotchety old man.

Warm regards,
Chris McArdle

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Replies to "Hi, i was diagnosed with a 2cm celiac artery aneurysm 4 years ago. Im 57. It..."
onemind711 | @onemind711 | Sep 5, 2018

Correction...not biannually, rather biennial

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finled | @finled | Dec 22, 2020

Thanks for adding that info Chris. I am 63 yers old and last Wednesday the Docs just found a 1,4cm celiac artery aneurysm on a Cat scan. i only know this because I have access via Mychart to my records and i read the results of the Scans. pretty bummed that after 5 days, i have not received a call. It is almost 2021 now and there still is little about this out there.

Hope you are doing well.

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deestone | @deestone | Oct 25, 2022

Oh, my goodness, having a celiac aneurysm and dissection in 2019 at the age of 38 was a terrifying experience, and to now come across more than a few people who have shared the same experience brings me hope. I was in the hospital for 11 days, mostly trying to control my high blood pressure, which may have contributed to my condition. They are still running tests that have yielded no results. I go for my annual CT scan, and while it hasn't grown, I'm afraid it will rupture someday. I didn't need surgery at the time, but I'm wondering if I can demand one now that it's not crucial.

I was at the age where I considered having another child, and still have the desire to have another, yet in my current situation, I have been warned not to have one just yet. Nonetheless, given the possibilities, they want to conduct additional tests just to be sure. I honestly don't think my doctors know what the next step is; I just hope that if I request surgery with a surgeon who has experience with this type of condition, it will give me time to reconsider what is and isn't possible. I don't want to live on false hope, but it would be beneficial if my doctors could assist me in reaching the end result. I need answers!

I'm so glad I found you all with this condition; even if it's a celiac aneurysm without a dissection, it's close enough that I don't feel so alone.

Do you mind if I inquire as to how those who underwent surgery are doing? Is this a one-time surgery, and what is the life expectancy after surgery if everything goes well? Any suggestions would be greatly appreciated.

Thank you for sharing,
Deestone

#CeliacAneurysmDissectionSurvivor
#CADS

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