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Forteo: What is your Experience?

Osteoporosis & Bone Health | Last Active: Jun 22 6:52am | Replies (67)

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@mayblin

Hi @janflute, have you finished 2-year FORTEO already? If so, do you mind sharing your Dexa results? Your case is very interesting in that your remaining parathyroid gland is not working well. Does your lab for pth and calcium level reflect that? The approval of third year of FORTEO is nice! Is the third year treatment for op or hypoparathyroidism or both? I’ve read continuous treatment beyond 2 years with FORTEO may not result in continued bmd increase, although it seems bmd will be maintained. Therefore bone markers maybe very useful in your case, although you’d need a serial of testings. Anyhow, for true and extreme hypoparathyroidism, will the effect of daily bolus of FORTEO mimic that of natural occurring pth, which is fine tuned by serum calcium level at any given moment? Will you be monitored closely re calcium levels as well as by a cardiologist? It’s great that you are under the care of a very skillful endocrinologist! Keep us posted of your treatment progress as your case is so intriguing.

As far as the belly fat issue you raised, I have read many posts describing it. My opinion is our age is the main culprit. I started to have a ‘tummy’ around 57, before using FORTEO. Indeed belly fat is more noticeable in a skinny person. During therapy we all are very focused with nutrition and diet which may cause us to ‘overeat’ a bit. I’m also having a very good appetite. Fatty deposit as a result of excess calories tends to be in the midsection in post menopausal women. In recent months I’ve lost some weight due to increased outdoor activities and a busy schedule and guess what, I notice my tummy a lot flatter! Now I don’t know to be happy with a flatter tummy or to worry about my slight catabolic state, which is not good for bones 🙁

Best wishes!

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Replies to "Hi @janflute, have you finished 2-year FORTEO already? If so, do you mind sharing your Dexa..."

@mayblin. I hear you. I gained several pounds after making sure I got enough calcium from my diet. It also raised my cholesterol levels, as I was getting a good chunk of it through dairy. Skim milk, fat-free yoghurt, and cheese, plus I also added more nuts and prunes (lots of sugar). Having said that, I did notice even more pounds being added once I started teraparatide 3 months ago. I feel very uncomfortable with the extra 8-10 pounds in total, (130 lbs now versus my ideal “older” weight of 120 lbs). I weighted 103-107 lbs when I was younger. I’m stepping up my exercise, cutting down my calcium through food and supplementing 250-500mg per day, and trying to control my calorie intake more (no more eating 5 prunes a day). Hopefully I’ll lose the weight very gradually. My family doctor suspects I won’t lose bone, as I haven’t had this weight for a long period of time, and if I lose it gradually I should be okay bone wise. But who knows? Thoughts anyone? I don’t feel comfortable with a belly, and I don’t want to get even fatter. It is too hard to lose at this age! I’m 65 years young:)