Hi @clevelandpatient , very nice to meet you! It sounds like you are dealing with an inflammatory vascular disease. I do know of a vascular doctor at the cleveland clinic that would be able to help you navigate your diagnosis. (By your user name I am guessing you are near Cleveland,Ohio?) The vascular doctor is Dr. Heather Gornik, and that is who I would see if I was in Cleveland. Here is a link: https://my.clevelandclinic.org/staff/6671-heather-gornik