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Has anyone been on Kadcyla for 55 cycles? Her2+ metastatic disease

Breast Cancer | Last Active: Jun 25 11:05am | Replies (8)
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@colleenyoung

@simondsa1, I'm tagging a few members who have experience with the targeted therapy, Kadcyla (T-DM1) is a targeted therapy, like @zeerj @maggieb892 @boathouse @timbrownfl @patclem @sandybainy1 @lisakinpa. Like @auntieoakley discovered, not many members have taken it as a long-term maintenance therapy.

Great to hear that Kadcyla has stablized the bone and lung metastases. I can imagine that you are concerned with the delay in continuing for the moment because of low platelet counts. Are the platelets recovering? Will you be able to start treatment again?

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Replies to "@simondsa1, I'm tagging a few members who have experience with the targeted therapy, Kadcyla (T-DM1) is..."
zeerj | @zeerj | Jun 21 6:08pm

@colleenyoung @simondsaI had to stop at 10. It was causing me radiation pneumonitis. I had radiation and unfortunately I was part of the 2% to have this side effect. I’ve heard some people with mets swear by essiac tea, sour sop leaves and apricot seeds. I do take apricot seeds daily in hopes to prevent it coming back.

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simondsa1 | @simondsa1 | Jun 21 8:31pm

I appreciate you doing this for me, thank you!
My pretty list only moved one point in the last two weeks. It appears that the platelets do recover, but it takes a very long time. I’m just hopeful to find somebody who’s been on it as long as I have. The unknowns are the the worst as you know.

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