Hello @SusanEllen66,

I really enjoyed reading your post and learning how you choose to be different! That is great. Your artwork is lovely, and I can tell that it provides you with a creative outlet. We all need that.

You've been so proactive as you've approached your health difficulties. I appreciate you researching your rare disorder to learn more about it. Starting a new discussion group was a great idea. You don't need to worry about stepping on toes here on Connect. We all have pretty sturdy foot ware and enjoy having others create new discussions to meet their needs. As you have seen, you have met the needs of many others in the process.

I'm glad that you found Connect and have made it a place to share your journey and offer support to others walking the same path.