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@mary612

Hi Lori
We are at day 9, lingering at the bottom of the blood counts and the chemo and transplant side effects are making themself known in a big way. Today is the first day he doesn’t want to drink or eat anything. Water is even tough because of the throat muscles not quite working right and the mucositis is thick. He has a constant drip of meds for pain which is helpful. Excellent nursing care too!

Waiting for the doc’s daily visit as I write this. So far he has been reporting that medically, Dane is on track. We just have to weather these next few days until he turns the corner and the counts start to rise.

I picked up Carnation Instant Breakfast and Orgain protein shakes today but I am waiting for him to want to try it. He is also experiencing GERD along with the swallowing difficulties, so we have to take it slow. It’s a catch 22 because when he drinks, he tries to get as much down as possible but if there is too much in his stomach he gets heartburn. 🤦🏻‍♀️

I am recalling your advice not to despair because this is part of the journey.

Thank you for checking in.

Mary

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Replies to "Hi Lori We are at day 9, lingering at the bottom of the blood counts and..."

This is a tough week…I remember it not fondly! 😉 I experienced severe mucositis, to the point I was on a fentynal pump for a week. Mucositis is inflammation of the mucosa, the mucous membranes that line the mouth and the entire gastrointestinal tract. So Dane may get to a point where he finds it impossible to eat or drink. His team will monitor that closely. The fentanyl pump for me really made a difference the 6 days it took for this to pass. The moment my neutrophils started making an appearance all the pain disappeared and mouth healed within hours!
Is he receiving Protonix for the heartburn?