Lonsurf (trifluridine/tipiracil) effectiveness

Posted by chuckmii @chuckmii, Jun 17 3:34pm

I have searched and read through the available threads on here but there doesn't seem to be a lot of information and consensus on Lonsurf. My research shows that it is the last resort in treating stage 4 MCRC. I have also read the effectiveness might give us 2 months of stability but not really any reduction in tumors. It really is just to give you some more time before the inevitable. Anyone have any experience with it or know anyone that has seen any positive results. Obviously concerned about side effects as it seems they save the drugs with the worst ones for last which makes sense. Talk to doctor on Wednesday but definitely scared based on where we are. I am waiting for the dreaded "T" word to drop.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

I'm taking Lonsurf chemo tablets also. Do you know for a fact that this is the last medicine they have for stage 4 colon cancer. The side effect is very bad.

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Based on everything I have researched and read it is. Our oncologist implied it at our last appointment, we could go back to FOLFOX, which had bad side effects for her or do this and everything in her notes essentially says when all other options are no longer effective, we will try Lonsurf. What side effects are you having and when did they start?

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@chuckmii

Based on everything I have researched and read it is. Our oncologist implied it at our last appointment, we could go back to FOLFOX, which had bad side effects for her or do this and everything in her notes essentially says when all other options are no longer effective, we will try Lonsurf. What side effects are you having and when did they start?

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I've been on them for at least 2 months. I have bad stomach pain, and nausea. It just have me feeling bad.

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