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Help with understanding test results
Autoimmune Diseases | Last Active: Jun 29 6:13pm | Replies (79)Comment receiving replies
in response to your question of how i found my two good specialist:
1. In 2017, i had surgery on
my shoulder. An x-ray related to my shoulder showed that i had some growths on my lungs. i called Cleveland Clinic scheduling, described the issue and was given an appointment with the only pulmonologist i’ve ever seen. He ran a battery of tests and found that i had asthma based on a test that is rarely used. i have NEVER tested positive for asthma on a traditional spirometery test. Re the allergist, he is also at Cleveland Clinic and i made an appointment with him after i had an anaphylactic reaction to a drug. I have the good fortune of having a health insurance plan that does not require PCP referrals.
At times, i ask doctors i trust to refer me to their trusted colleagues. i tend to quite quickly dump Drs i don’t trust and/or are dismissive to me.
I wish you the best of luck in finding and connecting with Drs who you trust and are concerned about you. When i have new or exacterbated health problems, i generally quickly and concisely send “my chart messages” to
my drs detailing the situation. Often their nurses respond on their behalf. i also tend to be clear in asking for what i think i need eg a holter monitor during a period when a pcp noted my heart beat was irregular but 5 minutes later did an eKG that was normal.
i don’t know if what works for me will work for anyone else.
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@elisabeth007 I also think it's best to not linger with a doc who doesn't feel right-I learned that the hard way with a PCP years ago, who was a very bad match. Since then, I had another "iffy" reaction to a pulmonologist (no pun intended) didn't return and now need to find a new one. Among other things, that pulmonologist charged Medicare an office visit fee-for answering a quick question I sent to her through My Chart and that has never "sat" well with me. No other docs I see have ever done that. I also have a Medicare supplement that allows me to see a specialist without a referral but is costly. I was under the impression this was true across the board for Medicare- but I am no longer certain of that. After what I have gone through so far (with good ins), I am concerned over the additional obstacles some people face who don't have good ins.