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Lori, Volunteer Mentor avatar

Snapshots of hope: Life on the other side of transplant.

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 23, 2025 | Replies (110)
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Profile picture for myfablife @myfablife

I am sorry to hear this for you, I was dx with AML with a mutation also. I was praying I could get stem cell TP but denied by 2 facilities that would have been my best chance, now it seems I will be on chemo/pill and pray I stay in remission. I did have a LTP 3.5 yrs. ago and have ckd also I am 63yo I am in excellent health but they feel NO. Extremely discouraging.
I pray and pray for you to get your TP.😊😊

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Replies to "I am sorry to hear this for you, I was dx with AML with a mutation..."
Lori, Volunteer Mentor | @loribmt | Jun 20, 2024

Hi @myfablife. Hearing a no-go for stem cell transplant had to be very frustrating. I’m wondering if your denial for the transplant is because of the liver transplant and your chronic kidney disease? The pretreatment chemo and the transplant itself can impact the liver and kidneys…both with toxicity levels and the potential for graft vs host disease.

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