I’m reading your post and identifying. I had RP and no other treatments and will be 3 years in October 2024. A lot of testing through infectious disease specialist turned up all negative. 2 cystoscopies about a year apart ( very painful due to my condition) reported some mild stricture in the urethra however uroflow check is adequate to empty my bladder. One urologist thought maybe lichen schlerosis and another said no just wait it out. I definitely did not fit the bill for LS. And will not agree to biopsies of the urethra 😫.
I’m not doing any more invasive testing and am improving ever so gradually. Sometimes a step forward and then back. It’s almost 3 years and I’m no where close to never giving it any thought like I was pre surgery but psa is still undetectable and I’m living with it.
I hope you feel better too and maybe faster than I. God knows every cell in your body. He’s The Great physician. Pray for more healing.