← Return to Snapshots of hope: Life on the other side of transplant.

Discussion

Snapshots of hope: Life on the other side of transplant.

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 21 11:30am | Replies (100)
Comment receiving replies
@dwolden

Well after speaking to a clinic admin we got a call from an RN who told us doctor is on vacation. She suggested we schedule a video appointment with the doctor to get our questions answered which we will of course be billed for. We agreed to do that since it seems to be the only way we will learn what the care plan is. Scheduling called immediately and the first such appointment is two weeks out. My husband and I are both very disappointed and worried.

Jump to this post

Replies to "Well after speaking to a clinic admin we got a call from an RN who told..."
Colleen Young, Connect Director | @colleenyoung | Jun 20 6:35am

@dwolden, thank goodness you got the call and things are moving forward in a manner of speaking. But I hear you that you are worried and disappointed. As others have mentioned, this does appear to be out of character for Mayo Clinic, especially this department.

I encourage you to contact the Office of Patient Experience to share this unfolding of events and communication breakdown. I know they would want to hear from you. Here is the contact information:
Mayo Clinic Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu

VIEW AND REPLY