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Snapshots of hope: Life on the other side of transplant.

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 21 11:30am | Replies (100)
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@colleenyoung

@dwolden, I want to follow up to make sure you got the call that you were waiting for from your doctor's husband and that things have been resolved. Have you been contacted in the meantime?

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dwolden | @dwolden | Jun 20 5:54am

Well after speaking to a clinic admin we got a call from an RN who told us doctor is on vacation. She suggested we schedule a video appointment with the doctor to get our questions answered which we will of course be billed for. We agreed to do that since it seems to be the only way we will learn what the care plan is. Scheduling called immediately and the first such appointment is two weeks out. My husband and I are both very disappointed and worried.

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dwolden | @dwolden | Jun 20 7:55am

Colleen within moments of the message I sent you we got a message from the transplant team. Pending the donor’s availability we are scheduled to begin the process on July 22!!! We are thrilled and grateful although mystified how this is happening without doctor’s help?
SO THANKFUL.

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